One Mother Makes a Difference

Sharon Terry’s world was turned upside down when two of her children were diagnosed with a rare disease called pseudoxanthoma elasticum (PXE). This disorder, also known as Grönblad–Strandberg syndrome, causes elastic tissue throughout the body to become mineralized. In this powerful video, one mother makes an incredible journey that leads to rare but real progress.

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by Jonathan D. Katz

02/21/2018